Health System Research Priorities for Children and Youth With Special Health Care Needs

Health care transition for youth with special health care needs.

PURPOSE Youth with special health care needs (YSHCN) increasingly live into adulthood, and approximately 500,000 U.S. youth transition from pediatric to adult health care systems annually. Through a systematic literature review, we sought to (1) determine adult outcomes for YSHCN who have no special transition interventions and (2) identify evidence for strategies that lead to better outcomes, ...

Children with special health care needs.

Barriers to care for children and youth with special health care needs: perceptions of Illinois pediatricians.

OBJECTIVE. To assess primary care pediatricians' (PCPs') perceptions of caring for children and youth with special health care needs (CYSHCN). METHODS. Cross-sectional survey of Illinois pediatricians. RESULTS. Thirty-five percent of surveys were returned and 26% were analyzed. The top 3 perceived barriers were insufficient time (72%), insufficient reimbursement (68%), and lack of support servi...

Teaching learners to care for children and youth with special health care needs.

(Fam Med 2007;39(2):85-7.) Editor’s Note: In this month’s column, Sweety Jain, MD, of the Lehigh Valley Hospital Family Medicine Residency Program in Allentown, Pa, discusses how residents and medical students can learn to care for children and youth with special health care needs in a family physician’s office. I welcome your comments about this feature, which is also published on the STFM Web...

Transition care for children with special health care needs.

BACKGROUND Approximately 750,000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, poli...